NICOLE ARI PARKER AND BORIS KODJOE &THEIR STRUGGLE WITH SPINA BIFIDA
Nicole and Boris at Welcome Home Roscoe premier January 28th
Sophie Tei-Naaki Lee, 2 ½, and Nicolas Neruda, 13 months Spina Bifida is a preventable disabling birth defect that Sophie Tei-Naaki has been diagnosed with. It is estimated that there are approximately 70,000 children and adults living with this birth defect; The Kodjoe’s daughter Sophie Tei-Naaki happens to be one of the many children affected. Nicole Ari Parker and Boris urge all women of child-bearing age to take their folic acid prior to conception as well as during the first three months of pregnancy. To learn more about this condition as well as about the Spina Bifida Association of GA, Then head over to:NICOLE ARI PARKER ONLINE
Spina Bifida can be easily managed. Basically what happens is during fetal development a hole is formed in the back when the skin doesn’t close all the way. This causes nerve endings to be exposed. Thus creating nerve damage depending on where the hole is on the back. Their are different levels. They end up having no feeling in their legs or feet sometimes up to their thighs. You can manage this by wearing leg braces, walker or wheelchair. My sister has it but you would never know. She is in a wheelchair now and people look at her like “Why is she in a chair?” because she looks just as normal as other teens. We were told horror stories about this birth defect and I am happy to say, its not that bad at all!!! More emotional for the parents. If anyone needs advice, has questions or just want to talk. contact me. tamalam12@msn.com
Hotttest couple ever…Cutest children EVER.
hi im 23 years old and i have a 5 year old boy with spina bifida and hydrocephlus, he has no movement/sensation from his waist down, he also has alot of shunt probs managing his hydrocephlus. he also cannot manage bowels and bladder and has brittle bones, even though its hard looking after him i feel so blessed and lucky to have dylan, he never moans about his conditions, he is a star in his wheelchair and wants to be a dj when older, he loves music.
your site is lovely . sonia
Hi, my name is Yvonne, I am 22 years old and I also have Spina Bifida. Everything is pretty much normal with me except my bladder and bowels. I self cath and have to basically help bowels move. I currently use a wheelchair to get around, but I have movement in my legs(not so much my feet) but I can still walk with assistance. I have no complaints about the life that was given to me. I just learn how to take one day at a time and trust in God because He is my HEALER! Although it gets hard at times when I get sick, I still live a normal life. I love to sing, write songs, travel and lots of other things too. I actually feel blessed to have Spina Bifida and Scoliosis because I just believe that God has a better way of using me and I can use my disability as a platform to inspire others to have hope. Thanx for listening!
Hi, my name is Felicia, I am 42 years old and was born with spina bifida occulta. I only had one operation at the age of 3 days and walk with a lomp. The doctor’s told my mom that it would be a miracle if I lived for 12 hours and here I go 42 years later. They also said that I would not be able to walk without braces or bare children. I never had braces and I have a 21 year daughter. I would love to someday meet you all.
My work email is felicia.hurdlewilson@navy.mil